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Bethany's battle rages a year after her death

Parents fight for custody of little sister

 

Kerry Williamson

Calgary Herald


CREDIT: Calgary Herald Archive

Lawrence Hughes blames his wife for his daughter Bethany's death on Sept. 5, 2002.


CREDIT: Calgary Herald Archive

Arliss, Bethany and Cassandra Hughes in May 2003.


CREDIT: Calgary Herald Archive

Lawrence and Arliss Hughes embraced at their daughter's funeral.


CREDIT: Calgary Herald Archive

Bethany Hughes

Thursday, July 17, 2003

When Bethany Hughes was buried at a north Calgary cemetery after her tough fight with cancer, her parents came together in tears and hugged beside her casket.

Close to a year later, however, and the once-close couple is again fighting through the courts, that moment amidst the grief of a funeral light years away.

"I wish we didn't have to do this," says Lawrence Hughes, Bethany's father, who fought hard to have his daughter undergo blood transfusions against her will and the will of her mother, Arliss. "It's not easy. But if this fight saves one life, it's worth it."

Hughes and his estranged wife will again face off in Calgary's Court of Queen's Bench this afternoon, a continuation of a bitter divorce and custody case sparked by the death of 17-year-old Bethany last September.

The Calgary teen died of acute myeloid leukemia while seeking alternative treatment at Edmonton's Cross Cancer Institute.

She made headlines nationwide after refusing to undergo blood transfusions because of her strong Jehovah's Witnesses faith.

Her father went against her and his wife, convincing the province to force his daughter to undergo 38 transfusions.

Bethany -- who used the name Mia in the media to protect her identity -- fought the protection order, claiming it was her right as a mature person to make her own medical decisions.

Bethany Hughes even tried to pull the medical tubes from her arms while bedridden at Alberta Children's Hospital.

Doctors who first determined she would die without transfusions eventually decided that she was too sick to face further chemotherapy sessions and gave up their custody of Bethany. She died Sept. 5, 2002.

Lawrence Hughes claims the Watchtower Society and his wife played a major role in his daughter's death by fighting the transfusions, and filed a scathing 17-point notice of motion with the court in April.

He is now fighting for sole custody of the couple's youngest daughter, 16-year-old Cassandra, who lives with her mother and is also a Jehovah's Witness. He claims he has only been allowed to see Cassandra three times since last summer, and is seeking to have her completely free of any influence of her faith and the society, which he believes has brainwashed his daughter and wife.

He is also calling on Arliss Hughes to be charged with criminal negligence over the death of Bethany, and for his wife and Cassandra to take "regular intense therapy sessions with a cult deprogrammer."

"I'm concerned about my daughter, what she's being taught and whether she will be allowed to get medical treatment if she falls sick," says Hughes.

"I want to be a part of her life. I want to see my daughter. I don't think it is right that I have to fight a billion-dollar corporation so I can see my daughter. I don't think that makes sense."

Shane Brady, the Toronto-based lawyer for Arliss Hughes, says Lawrence Hughes' allegations are "outrageous."

"He's saying that Arliss basically killed Bethany because she was so irresponsible, and because of that she shouldn't have custody of Cassandra," says Brady, whom Hughes also wants off the case because of his connections to the Watchtower Society.

"There's also some outrageous things being said about the religious community."

Arliss Hughes also wishes the court cases were over. She rigorously defends herself -- and her faith -- against any accusations that she put Bethany's health at risk, and believes Cassandra should be left to decide whom she lives with.

"I really don't see what this (Hughes' allegations) has to do with a divorce. This is about difference between a husband and a wife. In that sense, I think the children should be left out of it," she says. "This is about a couple who don't agree anymore, but who still love their children, and the children shouldn't be put in the middle."

Arliss Hughes says she did all she could to help Bethany. "I did everything she asked of me. We tried everything we could think of to get the doctors to take care of Bethany," she says.

As the anniversary of her death edges closer, the estranged couple do have one thing in common: the thoughts and memories of Bethany.

"To me, it's the little things that I think of, that remind me of her," says Arliss.

"I think of her every day," says Lawrence.

kwilliamson@theherald.canwest.com

© Copyright  2003 Calgary Herald

Continuing story:
Irreconcilable beliefs shattered family -Parents’ clash over transfusions led to divorce A bitter clash between religious beliefs and medical treatment led to the ultimate breakup and bankruptcy of a Calgary family, a judge has concluded in the parents’ divorce action. (added 11/20/2003)

Previous story:
Judge orders teen continue transfusions Lawyers for a 16-year-old girl, and her mother requested a stay preventing doctors from administering transfusions against her will. But the judge ordered a transfusion. The girl's father is also a Jehovah's Witness, but after reviewing Scriptures now believes there's nothing wrong with blood transfusions and favours the treatments to keep his daughter alive (added 02/22/2002).

Father shunned by family for defying faith to save child

The father of this girl is shunned by the Jehovah's Witnesses he once embraced since defying his faith by agreeing to blood transfusions for his 16-year-old leukemia-stricken daughter.
(added 03/11/2002)

Teen's transfusions must continue: Court
The Alberta Court of Appeal ruled that a young Jehovah's Witness from Calgary will have to continue getting blood transfusions. The 16-year-old girl, who suffers from leukemia, is not mature enough to make a decision that's crucial to her treatment, the high court said in upholding earlier rulings by lower courts.
(added 04/27/2002)

Dying teen leaves Canada for treatment
The father of a teenaged leukemia patient who fought against blood transfusions for religious reasons is upset that his wife has taken their daughter out of the country to a secret location where she'll begin alternative treatments.
(added 07/22/2002)

Jehovah's Witness teen happy to be 17 years old A Canadian girl is undergoing alternative chemotherapy treatment at an undisclosed location in North America. She made headlines earlier this year when she refused to receive blood transfusions. Her battle has torn her family apart. Her parents are now embroiled in divorce proceedings, split over Mia's refusal to undergo blood transfusions. (added 08/21/2002)

Dad of Alberta girl who fought transfusions lashes out at Jehovah's Witnesses The grieving father of a 17-year-old Jehovah's Witness girl who died of leukemia says he intends to sue the religious group, claiming it destroyed his family and caused his daughter to fight against blood transfusions. (updated 09/07/2002)

 

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